Matt & Nell

Well, it looks like we might have finally started to turn a corner. Up until this morning the doctors were just trying to keep Faith stabilized. Now they can switch modes and start trying to be more proactive. They started today by putting her on lasix. This drug is a diuretic that will help get…

The surgery went well considering all that was done. They did fix the coarctation as well as the AV canal defect. The operation lasted about 7 hours, and it was about 12 hours until we were able to see Faith again. It basically all went according to the plan that was laid out in the…

Today is the day that Faith finally gets her heart repaired. Nell and I are actually a lot more relaxed now then we were last night and this morning. It was kind of fun getting her ready in Pre-Op. They have little hospital gowns for babies. She went back in the OR for anesthesia around…

We received a call yesterday from the surgeons office. They need to move Faith’s surgery to September 3rd. We will keep you all posted as we get closer to Faith’s surgery and recovery.

So..we’ve been just a tad busy lately. I’ll try to write a brief update on the highlights before Faith wakes up to eat again. Faith has been doing really well! She has an appointment with the pediatrician, nutritionist and physical therapist once a week. So that in and of itself keeps us busy. We’ve finally…

So, it has been just over 7 weeks since faith was born. It is still amazing to me to think that God has entrusted us with her. Nell and I are so much happier having her home. The last few weeks have been jammed packed with appointments. Thankfully everything is still about the same as…

After 2 long weeks driving back and forth from the hospital, we are finally all home together! We spent Wednesday night at the hospital rooming in with Faith to make sure we were comfortable with the monitor and O2 she would be coming home with. Yesterday, we all came home from the hospital together. Faith…

For the last two weeks, we have had to leave Faith at the hospital as we go home to get some sleep. Today we finally get the opportunity to spend the night with her. It feels like the first night we are a real family. It’s an awesome feeling. I am so excited for this…

Today we received our first glimmer of hope. Until now, there was no foreseeable end in sight. We had no plan in place and we didn’t know what we were really working towards. Today, that finally changed. The cardiologist did an echocardiogram for the first time in a week. The Patent Ductus Arteriosus (PDA) is…

Waiting has become a normal part of our rutine. Every day we sit with Faith wondering what is going to happen. So far it has been 10 days and still nothing had changed. We continue to wait to see if she is going to need surgery before she comes home. Right now, we are waiting…