So..we’ve been just a tad busy lately. I’ll try to write a brief update on the highlights before Faith wakes up to eat again.
Faith has been doing really well! She has an appointment with the pediatrician, nutritionist and physical therapist once a week. So that in and of itself keeps us busy. We’ve finally gotten her feedings figured out so she’s been gaining more weight now like she should. She now weighs 9lbs 5oz. She had her core evaluation for Early Intervention on Monday and did very well. There were only 2 areas where she was mildly delayed and only by like 2 or 3 points each. Our coordinator said that if she didn’t have a dx Down Syndrome she wouldn’t have qualified for Early Intervention services because she did so well. So that was really encouraging. She is doing well with PT and we work with her throughout the week as well.
We actually went to the cardiologist today and the appointment went well. She had another echocardiogram so they could see if anything has changed. The cardiologist said that since she has some pulmonary hypertension and since she’s a little bit bigger now it might be good to do her surgery sooner rather than later. He’s going to discuss everything with the other doctors on Faith’s team and see what everybody has to say. We should be getting a call from him tomorrow to let us know what’s going on. He’s pretty sure we’ll be looking at her surgery for the end of August.
Matt is running around like crazy between everything with Faith, his school work for his masters program, and helping get everything ready for the Erie county fair in August. Hopefully he won’t be quite so spread out once this set of classes is done and the fair is over.
Alrighty, she’s waking up and she’ll be hungry…so time to go!