Archive for July, 2009

I never knew ‘busy’ until now…

July 23rd, 2009 Nell Turgeon No comments

So..we’ve been just a tad busy lately. I’ll try to write a brief update on the highlights before Faith wakes up to eat again.
Faith has been doing really well! She has an appointment with the pediatrician, nutritionist and physical therapist once a week. So that in and of itself keeps us busy. We’ve finally gotten her feedings figured out so she’s been gaining more weight now like she should. She now weighs 9lbs 5oz. She had her core evaluation for Early Intervention on Monday and did very well. There were only 2 areas where she was mildly delayed and only by like 2 or 3 points each. Our coordinator said that if she didn’t have a dx Down Syndrome she wouldn’t have qualified for Early Intervention services because she did so well. So that was really encouraging. She is doing well with PT and we work with her throughout the week as well.
We actually went to the cardiologist today and the appointment went well. She had another echocardiogram so they could see if anything has changed. The cardiologist said that since she has some pulmonary hypertension and since she’s a little bit bigger now it might be good to do her surgery sooner rather than later. He’s going to discuss everything with the other doctors on Faith’s team and see what everybody has to say. We should be getting a call from him tomorrow to let us know what’s going on. He’s pretty sure we’ll be looking at her surgery for the end of August.
Matt is running around like crazy between everything with Faith, his school work for his masters program, and helping get everything ready for the Erie county fair in August. Hopefully he won’t be quite so spread out once this set of classes is done and the fair is over.
Alrighty, she’s waking up and she’ll be hungry…so time to go!

Categories: Uncategorized Tags:

7 weeks and 2 days down

July 10th, 2009 Nell Turgeon No comments

So, it has been just over 7 weeks since faith was born. It is still amazing to me to think that God has entrusted us with her. Nell and I are so much happier having her home.

The last few weeks have been jammed packed with appointments. Thankfully everything is still about the same as it was when we left the hospital 5 weeks ago. Right now, we have started physical therapy and visits with a nutritionist. The physical therapy is to help Faith gain some more muscle tone to deal with the Down Syndrome. The nutritionist is working with us to help Faith gain some more weight. It is very difficult for Faith to gain weight because of her heart condition. We are getting there though.

Other than the weight gain, nothing health wise has changed. Faith has changed so much though. She is awake a lot more. They are surprised how awake she is because of the heart condition. She also likes to be held, ALL THE TIME. It makes it a little difficult to get things done because she will fall asleep in your arms, and then as soon as you put her down, she starts crying. Good times.

We appreciate everyone’s continued prayers. We all have faith that God can still work miracles.

Categories: Uncategorized Tags: