finally a break!!! it only took 12 days 😉


Today we received our first glimmer of hope. Until now, there was no foreseeable end in sight. We had no plan in place and we didn’t know what we were really working towards. Today, that finally changed. The cardiologist did an echocardiogram for the first time in a week. The Patent Ductus Arteriosus (PDA) is still open, but it is slightly more closed than it was for the last echo. The good news is that the cardiologist does not see the coarctation as life threatening. He feels that this can be monitored from home. If she does come home, she is still going to need oxygen, and she needs to get rid of the feeding tube. All of the nurses are working towards this. It is finally a break that we have been looking for and something to work towards. We are praying now that she will be able to come home by the end of this week. As of now, things are looking good.